6 yr. old, Thomas Lawson took it upon himself to become his little brother Taylor’s advocate in raising awareness and funds to help Cure Taylor. Little brother Taylor has a Rare Brain Disorder called Hydrocephalus. Taylor has undergone 17 Brain Surgeries and has 3 implanted devices in his brain that keep him alive.
“At night I pray that Taylor never has to have brain surgery again”, Thomas says in his book. Thomas is determined to tell everyone about Hydrocephalus and help find a Cure for his brother Taylor and all his friends whom also have Hydrocephalus.
This is a splendid book that tells a difficult story with the care of a big brother. One cannot help but be emotionally gripped and impressed by the drive of the author.
The pictures tell a story of struggle and hope and the enduring need for support through tough times and it made me wish that I had a magic wand.
The best that I can do is to spread the word and to assist in raising the awareness of this disease.
The word hydrocephalus is derived from two Greek words, hydro, meaning water, and cephalus, meaning head, and once was called “water on the brain.” Hydrocephalus is the condition caused by the accumulation of an abnormally large amount of cerebrospinal fluid (CSF) in the skull, or cranium. Normally, CSF flows continually from the interior cavities in the brain (ventricles) to the thin subarachnoid space that surrounds the brain and spinal cord.
Incidence and Prevalence of Hydrocephalus
Congenital hydrocephalus affects about one in every 1000 births. The overall prevalence in the United States is about 0.5%. Most cases are detected early, either at or soon after birth. The incidence of acquired hydrocephalus in adults is not known because it occurs as a result of injury, illness, or environmental factors.